top of page
Events
All throughout the year there are Bleeding Disorder events being held across the country. These events provide invaluable education and an opportunity to connect with others walking a similar path. Attending an event will be an enriching experience!
Upcoming Events
Oct 03, 2026, 12:00 PM – Oct 08, 2026, 12:00 PM
Location is TBD
A luxury advocacy voyage designed for healing, restoration, and reclaiming our individual narratives on the open sea.
Multiple Dates
Oct 09, 2026, 8:00 PM – 9:30 PM EDT
Virtual Event
"For women living with hemophilia and those still on the journey to diagnosis."
Multiple Dates
Oct 13, 2026, 8:00 PM – 9:00 PM EDT
Virtual Event
"If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming."
Oct 17, 2026, 12:00 PM – 3:00 PM EDT
Fleming's Prime Steakhouse & Wine Bar, 4501 Olde Perimeter Way, Atlanta, GA 30346, USA
Her'Story is a space where women come together to connect, share their stories, and build supportive relationships. It encourages understanding, learning, and uplifting one another through shared experiences.
Multiple Dates
Oct 19, 2026, 8:00 PM – 9:00 PM EDT
Virtual Event
"Esta serie está diseñada para la comunidad latina de hemofilia B, proporcionando un espacio dedicado a conectar, aprender y discutir temas clave que más te importan."
Oct 20, 2026, 9:00 AM EDT – Oct 21, 2026, 2:00 PM EDT
Virtual Event
-Share strategies for sustaining and advancing bleeding disorders care in the fast-changing world
-Promote dialogue and knowledge sharing between national member organizations (NMOs), healthcare providers, and national governments to deliver better care.
Multiple Dates
Oct 21, 2026, 8:00 PM – 9:00 PM EDT
Evento virtual
Estas conversaciones informales le permiten reunirse y conversar como una comunidad latina y parte de la comunidad de transtornos de sangrado. Animamos a los asistentes a compartir historias y técnicas de cómo afrontar la situación y para ayudarnos a mantenernos conectados virtualmente.
Oct 22, 2026, 2:00 PM EDT – Oct 25, 2026, 3:00 PM EDT
Location is TBD
"The Hemophilia B Men’s Education & Empowerment Program is a unique three-day experience, during which men are given a safe space to share their journey with others and gain support."
Nov 01, 2026, 8:00 AM – 8:00 PM EST
New York, NY, USA
"The TCS New York City Marathon is not only the best day in New York City, the 5-Borough race has become the world’s largest marathon with over 55,000 total finishers."
Nov 03, 2026, 12:30 PM – 6:30 PM EST
Shingle Creek, 9939 Universal Blvd, Orlando, FL 32819, USA
Golf Tournament
Nov 05, 2026, 9:00 AM EST – Nov 07, 2026, 12:00 PM EST
Hilton Orlando Lake Buena Vista Orlando, 1751 Hotel Plaza Blvd, Lake Buena Vista, FL 32830, USA
This is an annual patient education event where people living with bleeding disorders come to learn, grow and develop. Hope Conference is focused on education, empowerment, and community. We are proud to bring a diverse group of attendees living with bleeding disorders from around the United States
Multiple Dates
Nov 05, 2026, 8:00 PM – 9:30 PM EST
Virtual Event
"Introducing Living B: The Men’s Collective, a space built for men living with hemophilia B and dads raising the next generation."
Nov 06, 2026, 12:00 PM – Nov 07, 2026, 12:00 PM
Detroit, MI, USA
HFA will host Regional Advocate Trainings designed to help individuals and families affected by bleeding disorders build the knowledge and confidence needed to advocate for access to care.
Multiple Dates
Nov 10, 2026, 8:00 PM – 9:00 PM EST
Virtual Event
"If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming."
Nov 13, 2026, 2:00 PM EST – Nov 15, 2026, 12:00 PM EST
Tampa Airport Marriott, 4200 George J. Bean Pkwy, Tampa, FL 33607, USA
"One Drop welcomes those living with all ultra-rare factor deficiencies (including FId, FIId, FVd, FVIId, FXd, FXId & FXIII), and ultra-rare platelet deficiencies (including Glanzmann’s Thrombasthenia and Platelet Disorders.)"
Multiple Dates
Nov 13, 2026, 8:00 PM – 9:30 PM EST
Virtual Event
"Whether you’re a parent, partner, or family member, this is a place to connect, share, and feel supported by others who truly understand."
Multiple Dates
Nov 16, 2026, 8:00 PM – 9:30 PM EST
Virtual Event
"For women living with hemophilia and those still on the journey to diagnosis."
Multiple Dates
Nov 18, 2026, 8:00 PM – 9:00 PM EST
Evento virtual
Estas conversaciones informales le permiten reunirse y conversar como una comunidad latina y parte de la comunidad de transtornos de sangrado. Animamos a los asistentes a compartir historias y técnicas de cómo afrontar la situación y para ayudarnos a mantenernos conectados virtualmente.
bottom of page