top of page
Events
All throughout the year there are Bleeding Disorder events being held across the country. These events provide invaluable education and an opportunity to connect with others walking a similar path. Attending an event will be an enriching experience!
Upcoming Events
Multiple Dates
Mon, Aug 31
Virtual Event
"Introducing Living B: The Men’s Collective, a space built for men living with hemophilia B and dads raising the next generation."
Multiple Dates
Tue, Sep 08
Virtual Event
"If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming."
Multiple Dates
Mon, Sep 14
Virtual Event
"For women living with hemophilia and those still on the journey to diagnosis."
Thu, Sep 17
Location is TBD
"The Hemophilia B Women’s Education & Empowerment Program is an outstanding success for women with hemophilia B, mothers of children with hemophilia, and spouses! This is a unique three-day experience, during which women are given a safe space to share their journey with others and gain support."
Multiple Dates
Tue, Sep 22
Virtual Event
"Whether you’re a parent, partner, or family member, this is a place to connect, share, and feel supported by others who truly understand."
Multiple Dates
Mon, Sep 28
Virtual Event
"Esta serie está diseñada para la comunidad latina de hemofilia B, proporcionando un espacio dedicado a conectar, aprender y discutir temas clave que más te importan."
Thu, Oct 22
Location is TBD
"The Hemophilia B Men’s Education & Empowerment Program is a unique three-day experience, during which men are given a safe space to share their journey with others and gain support."
Sun, Nov 01
New York, NY, USA
"The TCS New York City Marathon is not only the best day in New York City, the 5-Borough race has become the world’s largest marathon with over 55,000 total finishers."
Thu, Aug 13
Orlando, FL, USA
Our premier event unites patients, families, and health care professionals for three days of insightful educational sessions, valuable networking opportunities, and a dynamic exhibit hall featuring leading pharmaceutical partners, organizations, and a showcase of research poster abstracts."
bottom of page